Changes

I have decided on some changes to my blog. Thismomsfranticmind will strictly be for my parenting posts. Anything else will be posted on my new blog:

sassyandclassyleo.wordpress.com

I decided on this change because recently I did some public speaking about my experiences with my son and special education to a class of future teachers. I’ve done this a few times but it motivated me to get back to becoming involved helping others learn how to advocate for their kiddos. So I decided I want to seperate this from my personal life. I want a seperate channel to express my experiences with life.

Please feel free to follow my new blog.

Thanks for the support!

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We just call him Ryan

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I love this picture. This is me and my son at Christmas 2010. This Christmas marked the change in his life, in our lives. About a month after this picture we finally found out what was really wrong with him. He has Epilepsy. But at the time we took this picture we didn’t know that yet. We were told my son was genetically defected and diagnosed with every mental disorder. ADHD(attention deficit hyperactivity disorder), ODD (oppositional defiant disorder), GAD (generalized anxiety disorder), PTSD(post traumatic stress disorder), depression, mood disorder and even bipolar disorder. All by the time he was 8 years old. He was on just about every type of psych med with 9 prescriptions. About a month before this Christmas photo was taken I was fed up and finally stood up to the doctors. I educated myself about any and every thing the doctors labeled him with, the medications and the side effects. I obsessed over it. I was fed up with them just throwing on another pill when his side effects got worse. I was fed up of him getting worse instead of better. I was fed up of believing those doctors and giving them all the power to do whatever to my son. If he was bipolar I was ready to accept that but damn it I was fed up with all their damn guesses. 9 prescription pills my son took each day and I was angry at myself for allowing the doctors to let it get to that point. After three attempts at partial hospitalization, we admitted him into the hospital. At eight years old my son was placed into the psychiatric unit in the hospital. He was in the hospital for two weeks and we even celebrated his 9th birthday there.

I look at this picture and realize there was a before and after. Before the diagnoses and after. I think back of all that has happened and there was one night that literally saved us both.

My son had been released from the hospital and home for the first time in years without any medication. What was scary was we found out he really had Epilepsy but the hospital couldn’t get a pediatric neurologist to see my son. So after my constant badgering and bitching the doctor finally agreed to release him and gave me a list of appointments I needed to make. To get in with a neurologist was a 3 month wait. But I didn’t care, I was so excited to bring him home!!

He started reading. He just sat in his room reading!! Now that’s just crazy talk…nope it’s true. I remember him telling me before he would look at the pages and it just looked like alphabet soup. But now when he looked at the pages the words came alive because he could read them. I think all those meds really messed with him but they also numbed the pain of our past for him. See three years before this we had moved from our home, the only one my kids knew and started all over leaving the past behind. The past being my son’s father who was abusive in many ways and we finally got away.

Fast forward. Extensive neuro psych testing found the rest of the pieces. No depression. No bipolar. He has Epilepsy, ADHD, non-verbal learning disorder(think high functioning aspergers/autism), and sensory processing disorder. But we just call him Ryan.

Now Ryan is almost 16. He’s a sophomore in a regular high school with an IEP (individualized education plan). This year will likely be his last year needing the social skills class which will allow him to take an elective class like photography. Next semester he’s signed up for ROTC. He wants to be a police officer and help people. He has a girl friend and loves who he is. He is thoughtful and caring. Funny and still obnoxious. He is a great kid and I am in awe of who he has become. Somehow this amazing kid with a shocking past is beating the odds and this mom couldn’t be prouder.

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Frustrations of being human

 

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My son, I love him dearly, but oh.my.god…can that kid drive me to my limits. My day consisted with kind of a crummy work day, then going to Walmart to pick up groceries for our Thanksgiving dinner. While shopping my son’s teacher called, a 20 minute conversation was had standing by the frozen turkeys. My son just decided he didn’t want to participate today, no work was completed for 6 periods. He wasn’t combative which sadly is good news. I spend my $150 in the self check-out. Come home to him in his “mood”.

Long story short, my son was upset his teacher embarrassed him in front of the whole class. He’s yelling and let me tell you, this kid has some lungs, and it pushes my limits. My daughter decides this is the time to inform him he was being selfish two days ago when he ate the last package of cinnamon rolls. So here I am, trying to discuss school and listening to them argue over fucking cinnamon rolls, both yelling over the other.

Finally my son and I get to discuss his day, his version. Sounds to me his lack of attention and honestly, I feel, his lack of respect has pushed his second period teacher to her limits. I listen respectfully and calmly explain “hey bud, do you think it’s possible when you have to be constantly redirected because of your lack of focus, do you think it’s possible that in a class of twenty something kids and the teacher who has a plan set by the school district how much work she is “REQUIRED” to teach all these kids for 9 periods a day, and that doesn’t allot her extra time to constantly redirect you or pull you aside for a lengthy explanation of how your actions appear disrespectful to her and the whole class…do you think it’s possible in her day she can, I don’t know, become human and get frustrated with you? Lose her patience?” Mind you while I said this, I had to snap my fingers a minimum of three times, and tell him no I will not let you speak yet at least two times. Sigh.. he is exhausting.

The night moved forward. Then Ryan begins to tell me how he was then yelled at after school because he was startled and did his extremely high pitched scream in someones face who then yelled at him to “knock of that god damn girly shit”. Sigh… big sigh… I’m expected to address each and every person who doesn’t have the ability to calmly explain in detail with compassion and honestly, I’m exhausted. Did I do this? Did I cause his thinking the world has to tip toe around his feelings?

Then I’m cleaning my house preparing for a big Thanksgiving feast and my mom visiting, that’s stressful, my mom! I always want things perfect for her, even though I can’t compare to hers, I want her to know I try, that she taught me what’s important. I must have told my son a minimum of twelve times tonight to lower his voice, stop yelling. I use hand gestures to remind him, I give him the look that says “Dude! Enough!”. I am calm and patient at 5 pm… even 6 pm.. but by 7:30 when I’ve had him purposely scream like a girl terrified on a roller coaster in my face, I’ve had enough. I’m now yelling at him, firmly. Even popping him in the mouth with the reminder “I’ve asked you how many times to stop yelling!?”. In the end, I kick him out of the living room which took at least twenty minutes to make him go, and he’s in tears might I add. And I’m sitting here pissed and feeling guilty.

In 3 hours I managed to turn his shitty “I don’t want anyone here for thanksgiving! I hate school and I hate my life and I don’t want to see anyone!” to cheering up and being back to his goofy self and laughing…. to sending him to his room in tears. And I’m sitting here blogging my frustrations to avoid going in my room and popping a xanax. I am afterall, human. Extremely amazing and strong, but still human.

One decision

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One decision..
One choice..

To take you to a completely different direction, open a whole new journey. Like a fork in the road, but there’s no guarantee which one is better for you. So fear is shouting “what if it’s worse than where I’ve been or where I’m at?”, then hope whispers softly “but what if it’s not?”.

Magic of beginnings

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24 hours

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Life lessons bottled up

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